Support for those with invisible Illnesses

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penguinsonpyke — Tue, 30 Apr 2013 03:08:16 +0100

noeforme: :P

penguinsonpyke — Sat, 13 Apr 2013 18:01:01 +0100

noeforme:

:P

chronicallyreal: You know when you hit rock bottom

penguinsonpyke — Tue, 09 Apr 2013 02:36:15 +0100

chronicallyreal:

You know when you hit rock bottom

chronicallyreal: I tell myself this all the time…

penguinsonpyke — Tue, 09 Apr 2013 02:34:52 +0100

chronicallyreal:

I tell myself this all the time…

PSA: If you don't have the illness, don't fucking tell me what it "should be like"

penguinsonpyke — Sun, 07 Apr 2013 01:47:14 +0100

par0xetine:

Don’t tell me what medications I should take.
Don’t tell me what side effects I should and shouldn’t have.
Don’t tell me how to feel.
Don’t tell me I am “too young” to have it.
Don’t tell me that I am overdoing it.
Don’t tell me I am using it as an excuse.
Don’t tell me I need to exercise more.
Don’t tell me it is all in my head.
Don’t tell me I need to change my diet.
Don’t tell me about your distant relative’s miracle cure.
Don’t assume you know what it is like to live even one day in my body with my illness.

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penguinsonpyke — Sun, 07 Apr 2013 01:46:33 +0100

par0xetine: My contribution to a little project we are doing in...

penguinsonpyke — Wed, 03 Apr 2013 03:45:29 +0100

par0xetine:

My contribution to a little project we are doing in Support Group. I didn’t have paper or pens while I was away so I had to write it in! My pred cheeks are my only giveaway. :)

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penguinsonpyke — Sun, 24 Mar 2013 21:07:51 +0000

helloitsimi: Inspired by the comments by weresehlat on my...

penguinsonpyke — Wed, 20 Mar 2013 17:57:36 +0000

helloitsimi:

Inspired by the comments by weresehlat on my depression post about their same problems with talking to people about lyme disease (more info here and here) , this is for everyone who has an illness which isn’t obvious.Fuck anyone who says “Oh but you don’t look ill”.

aryeo: Mental health.

penguinsonpyke — Mon, 11 Mar 2013 12:01:26 +0000

aryeo:

Mental health.

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penguinsonpyke — Mon, 11 Mar 2013 08:00:45 +0000

When doctors don't even leave a full line for list of health conditions and medications

penguinsonpyke — Mon, 11 Mar 2013 04:25:05 +0000

theburdensofbeingabadass:

To those

penguinsonpyke — Mon, 11 Mar 2013 04:09:57 +0000

flaresof-fibro:

getting up before 8am for work

attending school

who spend a fortune on potions that don’t help

handwriting/typing essays with throbbing knuckles/tremors

who have been rejected for disability/aids/recognition

whose IBS has them in the bathroom frequently

who has to swallow/consume huge/multiple pills everyday

who is denied parking spots from able-bodied jerks

who has an inconsiderate partner

who has no healthcare system that can support medications/appointments

who is living alone with no car (or has car but too ill to drive)

who has had to give up dreams like sport/music/university directly from chronic illness

who missed important concerts/weddings/reunions/opportunities because of illness

who have waited months for an appointment & years for diagnosis

who feels the world is giving up on them, though all they do is try and try

This post is for you! Cause you are awesome

chronically-something: THIS. damnit. droppedthreads: My...

penguinsonpyke — Mon, 25 Feb 2013 15:44:47 +0000

chronically-something:

THIS. damnit.

droppedthreads:

My friend is making me stickers.

Hey, I don't know if it's the kind of thing you would want to share on this blog, but I have a t-shirt campaign running on Teespring to try and get a Lyme Disease Awareness shirt printed. We need eight more preorders by Feb 8th for the shirt to get printed. Info and the link to my original post are in the sidebar of my blog. If you could reblog I'd be extremely grateful, but if not, thanks for your time reading this anyway. Much love and may you have many extra spoons. (:

penguinsonpyke — Fri, 25 Jan 2013 02:30:13 +0000

Hey, of course this is the kind of thing for this blog! If any of my followers could help out that would be seriously awesome! <3

Before I became chronically ill...

penguinsonpyke — Tue, 22 Jan 2013 17:31:17 +0000

thegiverofsmiles:

…I was never asked to prove my intelligence or my worth.

…I was never accused of being lazy or “not committed.”

…I was never told that maybe school or college wasn’t for me.

Before I became chronically ill…

…I did not appreciate my body and my health.

…I did not appreciate the people in my life who helped me succeed.

…I did not love myself nearly enough.

Before I became chronically ill…

…I did not appreciate the beautiful balance of blessing and hardship that is life.

chronicallyoptimistic: The sad reality of chronic illness!...

penguinsonpyke — Fri, 18 Jan 2013 19:53:00 +0000

chronicallyoptimistic:

The sad reality of chronic illness! Please, never give up hope ♥

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penguinsonpyke — Tue, 15 Jan 2013 15:47:33 +0000

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penguinsonpyke — Mon, 14 Jan 2013 18:41:08 +0000

I don’t know if you are interested in hearing or I’m just a little self-absorbed, but...

brokenfragilethings — Sun, 25 Nov 2012 19:39:04 +0000

I don’t know if you are interested in hearing or I’m just a little self-absorbed, but here is a blog post I once wrote about my arthritis. :)

HI, I’M JULIA. I’M SEVENTEEN YEARS OLD AND I’VE BEEN DIAGNOSED WITH JUVENILE IDIOPATHIC POLY-ARTICULAR RHEUMATOID ARTHRITIS.

You are are most likely sitting there with a confused expression on your face, thinking “Well gee, Julia, what exactly is this ridiculously long medical term that sounds like an episode of House/Grey’s Anatomy/some snore-worthy medical show that involves no drama or dreamy men?”and since you asked so nicely, I’ll explain. Here’s a story all about how my life got flipped turned upside down:

Twelve/thirteen is an incredibly hard, awkward age as it is, but it was the exact age range when my knees begun to swell to the sizes of grapefruit, were stiff, pained and making my entire life suck. This was after my thyroid disease was diagnosed- which, in case you were wondering, has been in remission for quite a while now.- so, this simply just became another trip to our family doctor at the hospital on the army base- staring up at the odd light fixtures they have with cartoons of airplanes and under-the-sea for three different visits just there until I was diagnosed-, but became so, so, so much more and begun my life as being a patient, it felt like, more so than just me.
Everyone sees their feeble, old and gray grandparents scooting along, wincing and saying “Oh, my hip!” when they hear the word ‘arthritis,’ and that’d been me when I was simply naive and didn’t realize, everyone was at risk for getting arthritis, and various other diseases alike, and they were not secluded to osteoarthritis- a different disease than what me and thousands of people experience.-
Juvenile rheumatoid idiopathic poly-articular arthritis with a positive rheumatoid factor is my exact diagnosis, which basically is just a jumble of words that is defined as being diagnosed under 18 with a disease where my hipster immune system attacks my joints instead of defending them, in lots- i.e. all- of my joints.
There’s plenty about this life I’ll never understand, and throughout the years of increasing pain and saying “I can’t today,” as my best friend for the evening on a Friday night is my skeleton covered, rice-filled heating pad (because that’s just another reasoning in the growing list why I’m not a cool, normal teenage girl,) one of those question marks has become “Why, God, did you give me this?” even though that’s an extremely selfish, unfair question, but that’s also blossomed into “Why, God, did you give this disease to that three year-old?” but, also into “Thank you, God, for all you’ve done through me and with me in these creaky joints.” because I’ve come to realize God never gave me something I’d been unable to handle in this world, but rather gave me this to be able to be a voice for an invisible illness and shed light that it really does exist in teenagers, young adults and little children, just like me and you.Despite being forced to give up something that for the first time in such an immeasurable while that made me passionate and happy- volleyball,- it’s also given me lots more to be passionate about, like young children and everyone who is faced with medical and life issues similar to mine. It’s empowered me, more than it could ever bring me down, and even while I’m cursing my bones, joints and body, I’m also praising the strength it’s given me. To be honest, I’m thrilled at all the curve balls He has thrown my way.
It’s been years of living in these rickety, creaky tin man-like joints, but I’m never giving up hope for a cure for those millions and I will ALWAYS be hopeful, because of Him.

Submission from brokenfragilethings

Might be helpful especially for any Christian or Jewish followers!