I haven’t felt this bad in a long time. I just want to curl up and scream.
Anonymous asked: Most people don't realise that I am really ill and whenever i relapse they act as if it's a common cold. I think there should be a lot more awareness off 'invisible' illnesses. I've has nephrotic syndrome for 14 years, ever since i was 15 months old, and i've relapsed 52 times. People don't understand how hard it can be. I love this blog and it always gives me...
So for anyone who ever feels alone with their...
diaryofasickkid: I am a member of a number of support groups through DailyStrength. Joining is free! http://www.dailystrength.org/home
Physical ills are the taxes laid upon this wretched life; some are taxed higher,...– Lord Chesterfield
Spent yesterday at a poetry event with some other chronically ill teenagers. It was nice to be with people who could empathise with me, and go at my own pace; but I was out for 5 hours so I feel dreadful today. I couldn’t even manage more than one lesson at school. Why can’t I just be normal?
nephronlove: We’re fighting a disease that has no standard of treatment. There is no book on how to deal with FSGS. Let’s take a moment to recognize how strong each and every one of us has to be in order to handle this.
Anonymous asked: Sometimes I feel like I don't belong in the invisible illness community. I have gastroparesis, but it's currently well controlled by medication. I still have bad days and I live with the constant fear that my meds will most likely stop working in time. I have more good days than bad, but no other community can understand me like this. I feel like I don't have a right to claim an...
Dear Immune System,
livingwithendo: Sincerely, The Rest of our Body
Life's a bit of a struggle at the moment.
Although my blood and urine protein aren’t constantly changing anymore, and all my levels are starting to stabilise (Not where they should be though), because of the stress of exams, I’m feeling awful. My body doesn’t produce enough cortisol (a stress hormone), so even dealing with exams drains me completely. Fingers crossed things start looking up in the next couple of weeks! ...
Anonymous asked: Just got a diagnosis after many years living with my chronic illness. It feels so strange thinking that the pain I've had for so long has a name now, and treatment options, and even a community of other people who share it.
Without fear and illness, I could never have accomplished all I have.– Edvard Munch
Just ordered this..finally a book on my condition! →
Hey guys, if you know a kid (or even an adult... →
abananainpajamas: Josh educates kids about Cystic Fibrosis through the use of a puppet, and humor. It is very lovely what he does. Check it out!