Life with a chronic illness:
My doctors: You can't do everything. You need to slow down and rest....
My teachers: You can't do everything. You need to slow down and rest....
My parents: You can't do everything. You need to slow down and rest....
My body: You can't do everything. You need to slow down and rest....
My mind: Limitations? What limitations?! LET'S GO PURSUE ALL OF MY DREAMS AND DO EVERYTHING IMAGINABLE!!!!!
I'm so happy!
So despite having an awful few weeks, today was great! I managed three periods at school, as well as lunch time. And I don’t feel completely awful, which is how I usually feel after doing an hour of anything. Fingers crossed I stay like this for a while! How’s everyone else?
illsharemyspoonswithyou: You know when you have plans, and you wake up feeling like death? Hate that.
Sorry for the lack of posts over the least few days; I’ve been feeling really rough and I’ve had a lot to do. My illness has kind of taken a turn for the worse at the moment and I’m really struggling, so please understand if I’m not always updating, but I’ll try to post stuff whenever I can :)
Heal Kick - Social Networking Site For Chronic... →
supersoygrrrl: modernistwitch: nuestrahermana: I just found this and it is awesome! Honestly, I am so grateful someone made something like this. If you want to add me on there just send me a message & i’ll message you my username! Also, please re-blog because this can be extremely helpful to so many. Reblogging for anyone who might find this useful! They acknowledge chronic lyme...
murderoticax: I hate when people tell me how lucky I am that I get to sleep till 1pm and they have to work ALL day. It’s a bit rude, I can’t work right now and I don’t go to bed till almost 5 am every night and I still don’t sleep sound. I’m also sick today so how in the world does that make me lucky? Trust me I’d rather be working my 8 hour shifts than be sleeping. I definitely feel like this...
I've been really shaky today.
It happens a lot, but it seems worse than usual at the moment; I dropped all of my pills this morning, I couldn’t thread my sewing machine and I’m having trouble typing, not to mention walking. I hope I’ll be a little more stable tomorrow.
My Lupus Motto:
I’m Sick and Tired of Getting Sick & Tired. Submitted by Jezrael Federico
Anonymous asked: i'm not as sick as other people here so i feel a little silly. i just have bowel problems, menstrual issues and really weak immune system. i love this blog though, because i get sick so easily i'm off of school alot and it makes me so angry when people say i'm faking it i can't be sick that much. grrrrr, sometimes i wish people would just accept you can be ill without puking...
Scott Jordan Harris: keeping a diary keeps me sane →
Writer and editor, 29-year-old Scott Jordan Harris, spends the majority of his time in bed due to severe ME and other illnesses. Here, he writes about how his favourite pass time has also proven to be the best medicine.
dtastes asked: Thank we for asking how we are all feeling. I changed my dose in prednisone from 15mg to 12.5 and in 2 days that had effected my right index finger joint above the knuckle. I can't bend it back or forward, its very swollen, and hurts. One the positive side at least its not my whole body though i've been fighting a cold for a month now and am hoping these antibiotics will make me feel...
One day of a reduced prozac dose...
And I’m a complete emotional wreck. I wish my body wasn’t so sensitive to drugs. And my mum and GP want me to stay on a reduced dose. It’ll make me faint less…but I have a feeling my depression is going to get a lot worse. Also, I only just found out today that my creatinine levels have been going up. My doctor didn’t seem to think that this was worth mentioning :/ ...
I haven’t felt this bad in a long time. I just want to curl up and scream.
Anonymous asked: Most people don't realise that I am really ill and whenever i relapse they act as if it's a common cold. I think there should be a lot more awareness off 'invisible' illnesses. I've has nephrotic syndrome for 14 years, ever since i was 15 months old, and i've relapsed 52 times. People don't understand how hard it can be. I love this blog and it always gives me...
So for anyone who ever feels alone with their...
diaryofasickkid: I am a member of a number of support groups through DailyStrength. Joining is free! http://www.dailystrength.org/home
Physical ills are the taxes laid upon this wretched life; some are taxed higher,...– Lord Chesterfield
Spent yesterday at a poetry event with some other chronically ill teenagers. It was nice to be with people who could empathise with me, and go at my own pace; but I was out for 5 hours so I feel dreadful today. I couldn’t even manage more than one lesson at school. Why can’t I just be normal?
nephronlove: We’re fighting a disease that has no standard of treatment. There is no book on how to deal with FSGS. Let’s take a moment to recognize how strong each and every one of us has to be in order to handle this.
Anonymous asked: Sometimes I feel like I don't belong in the invisible illness community. I have gastroparesis, but it's currently well controlled by medication. I still have bad days and I live with the constant fear that my meds will most likely stop working in time. I have more good days than bad, but no other community can understand me like this. I feel like I don't have a right to claim an...
Dear Immune System,
livingwithendo: Sincerely, The Rest of our Body
Life's a bit of a struggle at the moment.
Although my blood and urine protein aren’t constantly changing anymore, and all my levels are starting to stabilise (Not where they should be though), because of the stress of exams, I’m feeling awful. My body doesn’t produce enough cortisol (a stress hormone), so even dealing with exams drains me completely. Fingers crossed things start looking up in the next couple of weeks! ...
Anonymous asked: Just got a diagnosis after many years living with my chronic illness. It feels so strange thinking that the pain I've had for so long has a name now, and treatment options, and even a community of other people who share it.
Without fear and illness, I could never have accomplished all I have.– Edvard Munch
Just ordered this..finally a book on my condition! →
Hey guys, if you know a kid (or even an adult... →
abananainpajamas: Josh educates kids about Cystic Fibrosis through the use of a puppet, and humor. It is very lovely what he does. Check it out!
sexualmanhopastry asked: :3 This is a fantastic blog and a really nice place for people suffering with such issues. I know what it's like and I know sometimes people don't understand through no fault of their own. <3 I hope you feel okay currently.
chronicallyme1996 asked: hi i'm allie i was just wondering if you would like to talk sometime you seem to know alot about POTS, and orthostatic intolerance. i was recently diagnosed with POTS and i'm quite scared and confused about whats gonna happen next and how it could effect my life long term. Sorry I know you don't know me and I won't be hurt if u do not wish to respond. Allie<3
I swear I will be so mad if one more person says...
I know they probably mean well… But just because I look well, it doesn’t mean that I feel well. I wish people would understand that.
Had to go to the hospital this morning.
Thankfully, it was just for blood tests, so I wasn’t there long. But I truly detest blood tests and cannulas; and I have to have them a lot :( I’ll be seeing my Doctor on Monday, so hoefully she’ll have some sort of explanation for my recent back pains. Hope everyone else is coping all right <3